|Jingle Bell Walk for Arthritis 2012|
|Carrie & Skylar - |
"Our marketing team!"
My dear friend Carrie made over 30 necklaces/awards with a pendant that doubled as a Christmas ornament and had Lucianna's picture and the year on it. Mom, Dad and big sister all had a variation of the photo on our pendants. What a thoughtful idea, everyone loved it! Thank you Care (143*872).
I have never participated in a charity walk before but have donated many times to the Breast Cancer walk. We carried a banner that said, "Walking for Lucianna! Our Juvenile Rheumatoid Arthritis and Uveitis Champion!" and when other walkers and runners saw it, they would clap for us and cheer for Lucianna, yelling, "Go Lucianna!". These moments will live in my mind forever.
I wish I could thank everyone that helped us to meet our goal in this blog post, but you know who are and so do I. We are deeply grateful and touched by your generosity. Thank you for caring, for checking in with us to ask how she is, for reading this blog and for opening your wallets. You sent a clear message that it is not okay for a child to suffer with pain, or worse, face loss of sight because of this disease.
|"Mommy, I wanna 'wun!"|
|What a great day!|
At a time of year when we all count our blessings and try to be thankful for the gifts we have in life, I am thankful for JRA, [Uveitis, not so much. lol.] I am hopeful that 2013 brings remission, good health and nothing but gratitude.
Lucianna had her two week follow up eye appointment today. No inflammation! Drops are now down to 1 dose, left eye, every other day. What a fantastic Christmas present!!! This was music to our ears! We see her rheumatologist on January 10th. We hope to learn that Lucianna is free of any inflammation in her joints and that her labs come back with no signs that the medicines are causing any stress or damage to her liver. While we wish to just get to the end result...we are taking baby steps.
With that, I will end with Lucianna's favorite Christmas song:
HAVE A HOLLY JOLLY CHRISTMAS! (video inserted)
Merry Christmas everyone!
Lucianna's proud and grateful mama