Tuesday, April 16, 2013

One stubborn left eye...

Sitting with Daddy in the Waiting Area

Dear friends and family,

What a great patient she is!  We promise her the moon!
Well today we did not get the news we hoped for which was, "the inflammation is gone/quiet/under control" in her eyes.  We were told that she still has "some" inflammation in the left eye.  On a scale of 1-4, with 4 being "severe", she is a 1.  We like 1's more than 2's, 3's and 4's, that's for sure.

So what does this mean?  It means she still has inflammation and we need to get it under control soon - period. Dr. "D", an expert in the field of Uveitis, says that young children who have Uveitis and get it under control fairly quickly, have a much better outcome long term.  He says she will eventually "grow out of it" but how we do right now at getting it quiet will determine if she gets there with or without any irreversible damage to her eyes.  So he has advised that we increase her Methotrexate dose once again. Currently, she takes it orally and tolerates it well, (thank goodness).  We are grateful that we don't have to give her this medicine intravenous - many of the kids with JRA/Uveitis only know shots.   Dr. D wants us back in 8 weeks, (June 12th), to see if the increased dose has done the trick.  Thanks to all of you who sent well wishes, crossed fingers and your support...keep it coming!  

This June 7th marks the one year anniversary that we have been dealing with this frustrating illness - Juvenile Rheumatoid Arthritis.  Maybe the anniversary will bring us peace and "quiet".  That would be a nice gift after a year of so much uncertainty and worry.  We are excited for the day we can post that Lucianna is free of inflammation.

Lucianna's proud Mama

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